Myotonic dystrophy type 1: surveillance

Evidence-based neurology checklist on myotonic dystrophy type 1: surveillance: General clinical monitoring indices Speech and swallowing Mobility Balance Falls Activities of daily living Self-care School and social activities Work activities Respiratory clinical monitoring indices Cardiac clinical…

General clinical monitoring indices

  • Speech and swallowing
  • Mobility
  • Balance
  • Falls
  • Activities of daily living
  • Self-care
  • School and social activities
  • Work activities

Respiratory clinical monitoring indices

Cardiac clinical monitoring indices

Laboratory monitoring indices

Indications for neuromuscular respiratory specialist referral

Indications for more frequent cardiac surveillance

Indications for sleep studies

Acronym

References

  1. Ashizawa T, Gagnon C, Groh WJ, et al. Consensus-based care recommendations for adults with myotonic dystrophy type 1. Neurol Clin Pract 2018; 8:507-520.
  2. Pelargonio G, Russo AD, Sanna T, De Martino G, Bellocci F. Myotonic dystrophy and the heart. Heart 2002; 88:665-670.
  3. Boentert M, Cao M, Mass D, et al. Consensus-based care recommendations for pulmonologists treating adults with myotonic dystrophy type 1. Respiration 2020; 99:360-368.
  4. McNally EM, Mann DL, Pinto Y, et al. Clinical care recommendations for cardiologists treating adults with myotonic dystrophy. J Am Heart Assoc 2020; 9:e014006.

Related checklists

Loading...