Von Hippel-Lindau disease (VHL): monitoring

Evidence-based neurology checklist on von hippel-lindau disease (vhl): monitoring: Annual monitoring History and physical examination Pulse and blood pressure Catecholamine excess screen Plasma free metanephrines Twice yearly monitoring Two yearly monitoring Other monitoring

Annual monitoring

  • History and physical examination
  • Pulse and blood pressure
  • Catecholamine excess screen
  • Plasma free metanephrines

Twice yearly monitoring

Two yearly monitoring

Other monitoring

References

  1. Daniels AB, Tirosh A, Huntoon K, et al. Guidelines for surveillance of patients with von Hippel-Lindau disease: Consensus statement of the International VHL Surveillance Guidelines Consortium and VHL Alliance. Cancer 2023 (Online ahead of print).
  2. Louise M Binderup M, Smerdel M, Borgwadt L, et al. von Hippel-Lindau disease: Updated guideline for diagnosis and surveillance. Eur J Med Genet 2022; 65:104538. 
  3. Laks S, van Leeuwaarde R, Patel D, et al. Management recommendations for pancreatic manifestations of von Hippel-Lindau disease. Cancer 2022; 128:435-446.

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